So, I originally decided to come on here to vent a bit because I was feeling a bit stressed and isolated. Then I started messing with my blog and distracted myself from my original stress with a new one - this site! Is it just me or is it incredibly hard to navigate or do things to your profile? I guess I just don't get it. Anyone interested is welcome to teach me :). I'm trying to change the default email address (and delete the original one completely from this site). Just basic things are hard on here - or perhaps it's user error ;)
So I really want to thank the wonderful parents of children with special needs I've found on here. It is because of you all that I am motivated to start my own blog. I'm not entirely sure that anyone will read it, but I'm not sure that's what I need it for anyway. I guess the biggest benefit would be to be able to write & get some form of (free) therapy from it. Not keep it locked inside. That's not healthy for anyone. It would be amazing to build community here and interact long term with others who "get it" but hey, I won't get my hopes too far up. I'm learning more every day to be cautiously optimistic in life.
This week we have a big visit with a new Developmental Pediatrician. I'm hoping I will get some answers to some of my questions. The last DP was so awful (I'm sure she is a lovely person) that I wanted to shake her. I'm hopeful that this one will be better. It's not my daughter she needs to worry too much about - if she can handle my long list of questions she'll be golden.
Not sure if I'm cut out for this whole parenting a child with autism thing. Oh, I almost forgot I suppose I don't have a choice in the matter! I'm super grateful for my truly amazing daughter, but this diagnosis has put me on a doozy of a roller coaster. It's still fresh & painful. Hopefully that eases with time. And hopefully I get better at it. I would like that very much. For my sweet daughter's sake, for everyone around me's sake & for my own sake.
Sorry I don't have much left in me tonight. I'm exhausted from navigating this site! More later.
Peace-
There will be a lot of highs and lows, ups and downs with being an autism parent. Try to keep your attitude steady (not easy to do!). I remember how challenged and overwhelmed my wife and I felt at times, especially when we were still newbies. Hang in there!
ReplyDeleteI've found writing my blog to be therapeutic so I hope it will be that way for you, too. Don't stress out too much over the technology; you will pick things up along the way.
Best to you and your family!
We are definite newbs! Thank you for your support Yuji!
DeleteYay for starting! It will be lovely sharing our journey. I was so overwhelmed with technology too- I am not a tech-savvy person by any means. I used bloggerstop.net a lot, they have answers to everything :) good ol' blogger help pages are useful too :) you'll get it.
ReplyDeleteAnyway, thanks for your long (haha) comments on my pages, I will reciprocate some day.
I found that writing about the diagnosis, how we knew she was autistic right off the bat really opened the floodgates. It all flowed after that. We have a lot to say, it's just starting that's hard.